For those who don’t benefit from modulators, the fight against CF can feel isolating and uncertain. Five members of our community share how they’ve transformed their personal struggles into purpose — ...

Living with cystic fibrosis in Pakistan, I held onto hope that Trikafta would one day reach us. Against all odds, it did — and it completely changed my life.

Coming to terms with the reality of my cystic fibrosis as a child stirred a deep fear that I tried to numb for years through substance misuse. But today, I’m grateful to be on the other side, and am ...

Traveling has been a lifelong passion, and I won’t let cystic fibrosis keep me grounded. Here are my seven rules for traveling with CF.

Throughout my life, I experienced small, unexplained health issues that slowly accumulated. It wasn’t until I endured years of chronic pancreatitis that I finally received a diagnosis at 58 years old: ...

Our family has lived with the constant anxiety of managing cystic fibrosis since our daughter’s birth — which made it all the more devastating when she had to stop taking Trikafta due to its impact on ...