What if I could show you what’s inside of me, on the outside? I live with an ultra rare condition called Maffucci syndrome, which causes cartilage-based bone tumors to grow all over my body, often in unpredictable and painful ways. These growths don’t just change how I move or how I feel, they shape the literal structure of my skeleton. For most of my life, these tumors have been invisible to others, tucked beneath my skin, only seen on CT scans, MRIs, or X-rays. This wearable art piece is my wa

A few years ago, I saw this same geneticist and she said my muscular symptoms and progressiveness of my disease were disproportionate for the hypermobile subtype of Ehlers-Danlos Syndrome. Since neuromuscular disorders can also cause hypermobility symptoms and mimic connective tissue disorders, she did a neuromuscular panel in addition to a connective tissue panel. Surprisingly, I had a few mutations in the neuromuscular panel — one of which was pathogenic — and none on the connective tissue pan

Imagine thinking your opinion matters more than my quality of life?... Couldn't be me 🤪 Video Description: Samantha is seen wearing an all-white ensemble consisting of a dress with dangling pearls, a bedazzled white headband, @betseyjohnson earrings (PR), red lipstick, and gold pointed flats with a pink AFO brace. She's putting on different types of pain patches while talking to the camera. The text overlay reads "pain patches don't ruin your outfit, bb icons 💫🤍✨" #ChronicPainAwareness #Disab

The Government has immediate access to disaster relief assistance under the J$5.3 billion Contingency Fund and the J$1 billion National Disaster Risk Fund. Minister of Education, Skills, Youth and Information, Senator Dr. the Hon. Dana Morris Dixon, said this as she reassured the country of the financial mechanisms in the place for disaster recovery and relief, during today's (October 31) Special Press Briefing. Minister Morris Dixon also said that Jamaica has access to international disaster re